Registries in Hospice and Palliative Medicine
Clinical data registries (CDRs) have the potential to demonstrate value and drive measure development within the HPM specialty, advance Maintenance of Certification and research endeavours, and promote national quality improvement. Several federal programs are driving the need for physicians to utilize CDRs as a resource to meet certain guidelines and demonstrate effectiveness.
Society members that submit data to a CDR can easily satisfy the Center for Medicare and Medicaid Services (CMS) Merit-Based Incentive Performance System (MIPS) program requirements. CDRs are capable of supporting the continual process of measuring, reporting and improving quality of care.
Why is this important to me?
Quality measurement is critical to achieving the triple aim of healthcare value − better population outcomes, better experience of care, and lower total costs. Including robust measures for patients with serious illness who may benefit from palliative care is imperative. Performance on quality measures is increasingly linked to payment and used to justify the resources hospice and palliative care (HPC) programs need for sustainability and growth.
Existing HPC registries supply important pieces for solving the quality puzzle, but a complete solution will require deeper collaboration and integration.
What is the Academy doing?
In early 2016, AAHPM convened a Quality Strategies and Registries Meeting, where national leaders in hospice and palliative care quality improvement – including leadership of the Global Palliative Care Quality Alliance (GPCQA), the Palliative Care Quality Network (PCQN) and the National Palliative Care Registry (The Registry®) – discussed emerging issues and opportunities related to quality reporting, clinical data registries, and payment.
The group recognized the importance of collaboration in order to bring clarity to the field regarding data collection, encouraging deeper engagement in collaborative quality improvement and outreach to organizations in related business sectors, such as electronic health record vendors and certifying agencies. The meeting served as the impetus to develop a shared vision with the intent to move forward and work collaboratively to advance quality in HPC. Listen to meeting participants discuss the day’s events.
By the end of the day, five long-term objectives emerged:
- Create and convene a multi-organizational collaborative to support development, strategy, education and measurement for unification and integration of data to improve quality in HPC
- Educate, train and inform HPC teams about the importance of collecting data for quality improvement, in order to meet new standards around value-based reimbursement
- Develop more robust measures and expedited processes for measure development
- Integrate HPC and related measures into various settings (including primary care), all quality reporting systems, as well as alternative payment models; ensure quality initiatives are financially sustainable, translate into additional resources, and inform payment reform
- Consider ways to integrate registries and ensure data from registries are available to researchers and used to improve care
Learn more about this collaborative initiative and efforts to explore registry development.
- AMA STEPS Forward® module, “Quality Reporting and the importance of Qualified Clinical Data Registries (QCDRs) in maximizing your success”
- CMSS Primer for the Development and Maturation of Specialty Society Clinical Data Registries, 1st Edition, January 2016
- Registries for Evaluating Patient Outcomes: A User’s Guide, 3rd Edition
- PCPI National Quality Registry Network (NQRN®)
- Registry Business Case Tool – A business case template for those considering development of a clinical data registry. The template can help clearly identify a new or expanded registry program’s purpose, goals and objectives, as well as articulate the potential market opportunity for the registry.
- What is a Clinical Registry - Patient Edition – Information to share with patients about clinical registries and the importance of patient participation
- Participating in a Clinical Registry – Information about clinical registries for clinics, hospitals and health systems
- PCPI - Access recent PCPI webinars through the PCPI website. Please note: There is a fee for non-members to view past webinars. Members and staff of PCPI member organizations enjoy complimentary access. Below are a few suggested webinars.